Tuesday, March 29, 2011

God knows... even when I don't.

If there is one thing I have learned in my life it is that God has a plan. He does not clue me in to said plan and I just get to bump along and enjoy the ride. And enjoy it I do. Mostly.

The boys are teething right now.

My heart hurts for them because they are miserable and there is nothing I can do to take away the ache in their mouths. They smile and play like usual but they are a little more sensitive and there has been more crying than is typical around here. Poor little men.

I got off-track. I call C&C my little miracle men and I do so because they have brought me so much joy and they have really changed everything about me. They did the work of God in my life. I went back to church and I work on my faith every day. I pray with renewed hope and belief. I am more thankful and I constantly find myself in awe of the way that God works in my life. Enter Lindsey Scholz.

On March 23, 2011, I received a sweet, heart warming message on FaceBook from Lindsey, a gifted photographer, offering my family a portrait session. See, Lindsey realized all on her own what I have been preaching for almost 16 months- babies with Down syndrome are just plain GORGEOUS! That and she has a calling to spread the word and raise awareness that Ds is beautiful. Right she is!

I was blessed again this evening when I actually got to speak to her on the phone about coming to Columbus and doing this photo shoot and I am more excited about this than I can properly convey. Lindsey has this incredible spirit about her. I am really looking forward to meeting her and watching her work. You can view her photos on Facebook if you search for Lindsey Scholz Photography and you will see what I did when I first looked at her work- TALENT!

God had a plan when he gave Matthew and me Casey and Connor. He had a plan when they each got their bonus chromosomes and He has a plan every time I meet someone new. My mission in life is to make sure my sons get every opportunity they can and should. Meeting someone like Lindsey who is a stranger to me but who also wishes to raise awareness is a dream come true. Every time I think of the kindness and acceptance she has already shown my sons I get misty in the eyes. I know already she is an incredible person. God knew it before I did. Today is just another day when I am all too willing to enjoy the ride He has me on.

Life is sweet when you have

Double the love...


Tuesday, March 22, 2011

Take that DOC!

This article is amazing! I wrote my own commentary at the bottom and it sums up very well how I feel about this. PLEASE- if this touches you in any way share it- including what I wrote at the bottom.-Meghan

I'm Sorry, Your Baby is Normal

by Bob Lincoln
Thursday, 6 February 2003

Warning: this article is intended to make a serious point in an interesting way. It is not meant to offend anyone, except possibly doctors.

I'm very sorry, I have the results of the genetic tests and they have confirmed our suspicions that your fetus is what we call... Normal. Some people prefer the terms "Ordinarily Challenged" or "Normal Syndrome". The syndrome can be easily identified by a complete lack of any interesting genetic characteristics. I know this will come as a shock to you, but you should be aware of what this is likely to mean.

If your fetus manages to survive the rest of the pregnancy and the birth, which is becoming more common these days, he or she will face some daunting challenges. Children who suffer from normalcy are prone to health and psychological problems. It is almost certain that the growing child will suffer a seemingly endless stream of viruses. They will frequently damage themselves, and sometimes others, from their excessive energy.

Their relentless demands will put a strain on your existing family and, of course, your relationship with your partner will suffer, and possibly end in a painful and acrimonious separation. Any children you already have, even if they also suffer from normalcy, will be jealous of the newcomer and all their extra attention. Many siblings are liable to be psychologically scarred by the new arrival.

I need hardly mention the financial consequences, although disastrous, they will be nothing compared to the emotional turmoil your life will suffer.

After a while, you may be lucky and find they can be kind and loving young children. They may find some temporary happiness in things such as music, dancing, food or playing with toys.

But if they survive early childhood, a Normal child is almost certain to grow into a Normal adolescent. Your years of sacrifice will be thrown back in your face as they become disobedient, wild and reckless. Unable to find happiness and contentment, they will treat you with contempt until they manage to leave home. Even then the suffering will continue as they will often return to try and extract money. They will blame you for their own faults and leave you bitter and twisted.

They may well become criminals, over a quarter of Normals will have trouble with the law, many will spend time in jail. Many will have problems with alcohol or drug abuse. Normal marriages are often unhappy and short and over half end in divorce.

Even if they become successful this is likely to be because of the often observed tendency of Normals towards excessive greed. The chances of them sharing their success with you are remote and they will tend to see you as an embarrassment.

Finally, Normal people are likely to die before their time. 23% will die of cancer, 33% of heart disease. Hundreds every year in this country alone are so distressed by their condition that they take their own life. I'm sorry to say that many will have had a lonely, painful and pointless existence.

I am afraid that Normal Syndrome is a genetic condition that affects every cell of the body, and so is impossible to cure.

Termination is an option.

Shall I book an appointment?

...from a parent who received a diagnosis rather like this.

Note from Meghan Wilkinson: Imagine if you were told all these things about YOUR baby. These are the things parents of children with DS are told all the time. Especially the part about termination. Think about this. REALLY take a moment to process that and THINK about what it would mean to you to hear these words. AWFUL right? WHY is it OK for doctors to frighten the parents of children with DS but they would never dream of saying these things to a parent pf a typical child? How many of the people serving life sentences in prison have Down syndrome? How many rapists, murderers, child molesters, crooked politicians, dictators, terrorists, drug addicts, wife beaters, alcoholics, drunk drivers, serial killers, kidnappers, perverts, slackers have an extra 21st chromosome? WHY is it considered a burden by so many to have a child with DS when the only thing that is GUARANTEED with a "typical" child is that they have potential. Look at it like this. I was a typical child and look what I am now. I am a stay at home mom who failed out of college because I chose to drink mass quantities of alcohol and not go to class. I then became a job hopping, debt accruing slack ass. I continued to drink and smoke and never lived up to ANY of my POTENTIAL. That was all true until I gave birth to MY MIRACLES and now I am trying to live up to the potential I had when I was born. Do you think that if the doctors knew what I would have done in my life to this point they would have suggested termination? My point is- no one's future is set in stone. I don't care how many chromosomes you have. You can have 46 like science says is perfect and DO NOTHING WITH YOUR LIFE. WAKE UP DOCTORS- PERFECTION is in the eye of the beholder and THIS mother is NOT going to stand for your insensitivity and biases any more. I'M FIGHTING BACK. The 90%+ abortion rate for babies with DS disgusts me and IT IS MOSTLY YOUR FAULT! QUIT SCARING women into thinking their lives will be forever ruined if their baby has DS. QUIT TAKING AWAY HOPE! God doesn't make mistakes- he does seem to make a whole lot of jerks that wear white coats, though.