Tonight I am full of love and pride and HOPE! Yesterday I heard the beginning of a story about a set of twins who were to be adopted into the same family. One of the babies was diagnosed with Down syndrome and he found himself left in the NICU of Arkansas Children's hospital with no one to take him home, without his twin and with the added bonus of a Do Not Resuscitate order in effect. Talk about a lucky streak- not so much.
When I first read about this little man my heart broke. I mean that quite literally- it was suddenly painful to breathe and all that I could do was try to fathom the cruelty and callousness of people.
Before Casey and Connor were born I didn't know if I could handle a child with special needs. After they were born and diagnosed I learned that it is not that difficult and the rewards FAR outweigh the hardships. In fact, other than the occasional ignorance of people there have been no hardships. My sons have changed who I am to the very core of my being. Because of this it is my new wish to change the world.
Back to Baby Doe- I posted the story to my FaceBook wall and it began spreading as others in the Ds community caught wind of the story and posted it on their walls and emailed the story as well. Baby Doe appeared in blog posts, letters to the Governor, appeals to the press, the hospital B.O.D., and prayers throughout the world. This tiny little person went from not having a family to having THOUSANDS of people praying for him and lining up to be his advocate. WE became his family. Together we became ONE for Baby Doe.
We called, emailed, blogged, prayed, cried, hoped, prayed, strategized and repeated until we finally received word that the DNR was lifted.
Praise be to God! We fought and we took a stand and now, this little man who is more loved than he knows has what we all wanted for him- a chance.
Let this be a lesson- You can make a difference if you care and if you make your voice heard. You CAN change the world.
"So when you feel like hope is gone,
Look inside you and be strong,
And you'll finally see the truth that a hero lies in you."
Keep praying for Baby Doe- he is still a sick little man.